When I had my surgery back in 2001 (yes, I'm an old-timer now), recommendations were still to basically avoid doing anything with the arm on the affected side: don't carry a purse on that side, don't carry a suitcase or groceries. In fact, it was commonly recommended to never lift anything heavier than 5 pounds - forever!
Since I was determined to not be limited by either my disease or my survival, I was convinced those recommendations couldn't possibly apply to me. My natural assumption is that exercise is good for me, and I figured that must be true in this case as well. So I started doing my own research. I found there were women who were doing lots of cool things like climbing, dragon boat racing, playing some serious high-powered tennis, and weight lifting.
I spoke to a couple of lymphedema therapists who said yes, those are the medical recommendations, however anecdotal evidence is showing that women can probably do much more. One of them told me to try it and see what happens. But she recommended starting off slowly to see how my body reacted.
The relationship between exercise and lymphedema is not straight forward. Exercise does increase the amount of lymph that your body has to process. And any muscle strain or injury would also increase the workload for the system. The idea was that that increase might overload an already-stressed lymph system. But on the other side, increased deep breathing from exercise and the constricting of muscles can help the body pump lymph.
Into this unknown territory we stepped - myself and a lot of other women who refused to be pushed to the sidelines simply because we were unlucky enough to have breast cancer. We started slowly and discovered that, yes, we can be strong.
And finally, research has caught up with us. Last year, a study from the University of Penn. School of Medicine found that women with lymphedema who took part in a regular, progressive weight training program had fewer flare-ups compared with non-weight lifters. Lifting weights had no detrimental effects and showed significant benefits for women with lymphedema. (I wrote about the study back in August of 2009) Further results found that breast cancer survivors who took part in the weight lifting program had markedly improved feelings about body image and their intimate relationships. (Yea - lifting weights might improve our sex lives!??!?!) This improvement was not based on how strong the women were or how much strength was gained. The benefit seemed to come simply from the act of taking part in a regular program.
So, yes, lift weights. But do it right.
It's a good idea to take measurements of your arm before starting. Measure around your arm in several places: upper arm, just above the elbow, forearm, wrist. Write it down, and periodically recheck it. That way you'll be able to keep track of any early signs of swelling. If you do start to have some swelling, talk to your doctor or see a lymphedema therapist.
Start off very easy to see how your body reacts. Your body learns to compensate for the damaged lymph system. It learns to redirect the lymph to other nodes. But it's important not to overload your system all at once. So begin with no or very little weight. No weight exercises can be highly effective. Do them slowly and perfectly controlled. Make sure you lower just as slowly. I like to use water bottles to begin adding weight. They only weigh a pound or two, and you can vary the amount of weight if you need.Once you've gotten started, you'll want to progress - presumably you want to be able to lift more than a water bottle. A safe progression is just as important as starting off slowly. When you're ready to increase, you must do it gradually. You can increase the number of repetitions or the amount of weight. Don't increase both at the same time! Only increase one element at a time. You don't want to overload your system at any point - you could end up with a flare-up or an injury. A good rule of thumb is to increase only 10% at a time. If you're doing 10 reps., increase just 10% - do 11 reps. If you're lifting 5lb. weights, increase just 1 lb. (You can round up). This is just a guideline, it doesn't have to be exact. But keeping this in mind can help you avoid injury or burnout. Once you've made an increase, stick with that for at least a week or two before another increase. You have to give your muscles time to gain adequate strength before another increase.
If you are used to being active, this can seem slow and frustrating. But remember, you're in this for a lifetime, not just a month. An injury or strain can set you back weeks, months, or more.
And also remember, lymphedema is a lifelong risk. If you take some time off and lose muscle tone, start off a little easy again. Build back up to where you were. I always make sure to build up slowly to any of my higher-intensity activities like windsurfing or climbing. I never just jump into it.
Weight lifting is an important component in a complete exercise program. The risk of lymphedema is real and should not be ignored, but it's not a reason to avoid weight training. You need a safe, slowly progressive plan. A good trainer can help with that if you need some guidance.
So, Tonya, Cheryl, Rita, I., A., and everyone else: lift weights - just do it right.
Julie

